Lokho omunye udokotela acabanga ukuthi kwakuyisimo esilula se-eczema yabantu abadala ngoDisemba 2008 kwaqala izinyanga eziyisishiyagalombili zokuvakashela udokotela, ukuhlolwa kwegazi, ama-x-reyi, ama-scan, ama-biopsies, amaphilisi, i-potions kanye nezinto zokugcoba. Lokhu ekugcineni kwaholela ekuxilongweni kwe-lymphoma. Futhi hhayi nje noma iyiphi i-lymphoma kodwa i-T-cell rich B-cell, isigaba esingaphansi 'esimpunga' se-B-cell enkulu, i-non-Hodgkin lymphoma, isigaba 4.
Izimpawu zami zaqala ngoNovemba 2008 lapho ngibuya esikoleni. Ngaba nokuqubuka enkambeni yami omunye udokotela acabanga ukuthi kwakuyisikhunta. Ezinsukwini ezimbalwa kamuva, omunye udokotela waxilonga iPityriasis Rosea futhi wangifaka ku-prednisone. Ukuqubuka kwaqhubeka, empeleni kwaba kubi kakhulu futhi ngadluliselwa kudokotela wesikhumba. Wandisa imithamo yami ye-prednisone eyayisusa ukuze ngosuku lukaKhisimusi ngibukeke ngimuhle kakhulu futhi ngosuku olwandulela unyaka omusha, (udadewethu oneminyaka engama-21) isikhumba sami sase sicishe sibuyele kwesijwayelekile.
Lokhu akuzange kuhlale isikhathi eside futhi ngasekupheleni kukaJanuwari ukuqubuka kwase kubuyile.
Phakathi noFebhuwari imilenze yami yaphansi yaqala ukuba buhlungu sengathi iyasha. Baphume benezigaxa ezibukeka zilimele okuthe, ngemuva kokuhlolwa okuningi kwe-pathology, kwaqinisekisa i-Erythema Nodosum. Ngaso leso sikhathi, udokotela wami omusha wayala i-biopsy yesikhumba njengoba ukuqhuma kwase kubuyile futhi kuba kubi kakhulu. Imiphumela evela kulokhu iphakamise ukulunywa kwesicabucabu noma ukusabela kwezidakamizwa okuyinto engalungile. Lesi simo saphela ngemva kwamasonto ambalwa nge-prednisone.
Ngabuyela kudokotela wesikhumba ekuqaleni kukaMashi ukuze ngiyohlolwa. I-rash yayisekhona futhi ingaphenduli kunoma yimiphi imithi. Ngenxa yokuthi yethulwe endaweni yami yendololwane yangaphakathi nangemuva kwamadolo ami, futhi nginomlando wesifuba somoya ebuntwaneni, lo dokotela waqhubeka nokuxilongwa kwakhe kwasekuqaleni kwe-eczema yabantu abadala nakuba, ngalesi sikhathi, nganginemihuzuko ebusweni bami, entanyeni, esifubeni, emhlane. , isisu, ithanga eliphezulu kanye nebele. Ngasimboza ngayo futhi yayiluma ngendlela okwakungenzeka ngayo.
Ngalesi sikhathi, isikhumba sami sase sisibi kangangokuthi ubaba wayengibopha izingalo ngamabhandishi ngaphambi kokuba ngilale ukuze angiyeke ngiwanwaye. Ngasekupheleni kukaMashi, ukuqubuka ezingalweni zami kwakubi kangangokuba wawungezwa ukushisa kuphuma kuzo ukusuka kude. Ngaphuthunyiswa esibhedlela lapho odokotela bangitshela ukuthi yi-eczema kuphela, ukuthi yayingenalo igciwane futhi ngithole i-antihistamine. Ngakusasa ngabuyela kudokotela wami owayesezwa iphunga lesifo ngingakaqedi ukukhipha amabhandishi.
I-Erythema Nodosum yabuya ekuqaleni kuka-April. Ezinsukwini ezimbili kamuva ngabuyela kodokotela lapho umama ekhathazekile ngokubukeka kwamehlo ami. Ijwabu leso lalivuvukele impela futhi kubukeka sengathi ngidabuke nginethunzi elinsundu lamehlo khona kanye kuwo womabili amehlo. Omunye ukhilimu we-steroid uxazulule lokhu.
Ngemva kwenyanga ngase ngibuyele kwadokotela nginegciwane esweni lami elibizwa ngokuthi i-Phlyctenular Conjunctivitis. Amaconsi e-Steroid agcina esuse lokhu.
I-CT scan yaphakamisa ukuthi i-Sarcoidosis engenzeka kodwa i-radiographer ngeke ikhiphe i-lymphoma.
Kwakhishwa i-biopsy yenaliti enhle. Ezinsukwini ezimbili kamuva, udokotela wethu wafona ethi i-lymphoma iqinisekisiwe. Nakuba ekuqaleni ngangimangele futhi ngithukuthele ngokuxilonga futhi ngikhala ngakho, mina nomndeni wami empeleni sasikhululeke ngempela ukuthola ukuxilongwa nokwazi ukuthi kuyelapheka futhi kuyelapheka.
Ngadluliselwa ku-RBWH ngaphansi kokunakekelwa kwe-hematologist uDkt Kirk Morris.
UDkt Morris uyalele ukuhlolwa okuningi okufana nokusebenza kwenhliziyo, i-PET scan, i-Bone Marrow kanye ne-Lung function okwenziwe ngesonto elilandelayo. I-PET yembula ukuthi isimiso sami se-lymphatic sasigcwele umdlavuza.
Bekuthi uma umzimba wami bewazi ukuthi isifo sesilandile ekugcineni njengoba sekuphele lezi zivivinyo, umzimba wami ubusuvaliwe. Amehlo ami ayengasaboni kahle, inkulumo yami yayinkenketha futhi inkumbulo yami yayingasekho. Ngokushesha ngangeniswa esibhedlela futhi ngenza i-MRI. Ngahlala esibhedlela izinsuku ezingu-10 lapho benza enye i-lymph node biopsy, ngabona odokotela babo be-dermo kanye namehlo futhi ngalinda ukuthi yiluphi uhlobo lokwelashwa abazongibeka kulo umdlavuza wami.
Impumuzo yami ekugcineni ngithole ukuxilongwa kwaqhubeka phakathi nezinyanga zami zokwelashwa futhi ngangifika njalo esibhedlela, noma ngabe ngiyohlolwa noma ngekhemo, ngimamatheka ebusweni bami. Abahlengikazi babevame ukuphawula ngendlela engangijabule ngayo futhi bekhathazekile ngokuthi ngangingakwazi ukubhekana nesimo kodwa ngifaka ubuso obunesibindi.
I-Chop-R yayiyi-chemo yokuzikhethela. Ngathola umthamo wami wokuqala ngoJulayi 30 futhi ngemva kwamabili ngemva kwalokho kwaze kwaba u-Okthoba 8. I-CT kanye nenye i-PET yayalelwa ngaphambi kokuba ngibone uDkt Morris futhi ngasekupheleni kuka-Okthoba. Akekho noyedwa wethu owamangala nakancane lapho engitshela ukuthi umdlavuza wawusekhona nokuthi ngizodinga omunye umzuliswano we-chemo, kulokhu ESHAP. Ubalule nokuthi ukufakelwa i-stem cell bekukhona emakhadini.
Ngenxa yokuthi le khemo yalethwa ngokufakwa ngaphezulu kwamahora angu-22 izinsuku ezinhlanu ngekhefu lezinsuku eziyi-14, ngifake umugqa we-PIC engalweni yami yangakwesokunxele. Ngiphinde ngasebenzisa ngokugcwele ukukhululeka ku-Melbourne Cup futhi ngaya ephathini ngaphambi kokuqala i-ESHAP . Lokhu kwaphindwa kathathu, kwaqedwa ngaphambi nje kukaKhisimusi. Ngalesi sikhathi ngangigaxwa igazi njalo futhi ngangeniswa ngoNovemba ukuze bakwazi ukuvuna ama-stem cells ami ukuze ngifakelwe omunye.
Kuso sonke lesi sikhathi isikhumba sami sahlala sinjalo - crappy. Ingalo yami yesokunxele yavuvukala njengoba ngase nginamahlule egazi ngase-PIC ngakho ngangibuyela esibhedlela nsuku zonke ukuze ngiyothola igazi futhi ngifake izinto ezinciphisa igazi futhi ngafakwa ne-platelet. I-PIC yasuswa ngemva nje kukaKhisimusi futhi ngasebenzisa ngokugcwele lokhu kwaba ukuya olwandle izinsuku ezimbalwa. (Awukwazi ukuthola i-PIC imanzi.)
NgoJanuwari 2010 futhi ngangibuyele esibhedlela ukuyofunda mayelana nokufakelwa kwami umongo wethambo (i-stem cell yami), kanye nokuhlolwa okuyisisekelo okuhlukahlukene kanye nokufakwa kolayini wakwa-Hickman.
Isonto lonke bangipompa egcwele izidakamizwa ze-chemo ukuze babulale umnkantsha wami. Ukufakelwa kwe-bone marrow noma i-stem cell kufana nokuphahlaza i-hard drive yekhompiyutha bese uyakha kabusha. Ukufakelwa kwami kwenzeka ngaphambi kwesidlo sasemini futhi kwathatha yonke imizuzu eyi-15. Babuyisela kimi u-48ml wamaseli. Ngazizwa ngimangalisa ngemva kwalokhu futhi ngavuka futhi cishe ngokushesha okukhulu.
Kodwa mfana, ngabe ngiphahlazekile ezinsukwini ezimbalwa ngemva kwalokho. Ngazizwa nginengeka, nginezilonda emlonyeni nasemphinjeni, ngingadli futhi ezinsukwini ezimbalwa ngemva kokufakelwa, ngangibuhlungu ngenxa yezinhlungu esiswini sami. Kwayalelwa i-CT kodwa kwangavela lutho. Ubuhlungu baqhubeka ngakho ngafakwa kwi-cocktail yezidakamizwa ukuze ngiqede. Futhi namanje akukho ukukhululeka. Ngapakishwa izikhwama zami ukuze ngigoduke ngemva kwamasonto amathathu kodwa ngangizodabukisa. Angivunyelwanga ekhaya kuphela, kodwa ngaphuthunyiswa esibhedlela ngoMashi 1 njengoba bebona ukuthi isisu sami sasigcwele ubomvu. Okuwukuphela kwezindaba ezinhle phakathi nalesi sikhathi ama-stem cells ayethathe kahle futhi ezinsukwini ezingu-10 ngemva kokufakelwa isikhumba sami ekugcineni saqala ukuphulukiswa.
Kodwa-ke, ngagcina ngigubha usuku lwami lokuzalwa lwe-19 e-ICU futhi ngakhumbula kahle inqwaba yamabhaluni engathengwa u-Annie wami.
Ngemva kwesonto ngidla i-cocktail yemithi yobuhlungu (iningi layo elinenani lasemgwaqeni) kanye nemithi elwa namagciwane ehlukahlukene, odokotela base-ICU bagcina benegama lesiphazamisi esasingigulise ngemva kokufakelwa kwami - mycoplasma hominis. Angisakhumbuli lutho ngalesi sikhathi njengoba ngangigula kakhulu futhi ngaba nokuhluleka kwesistimu okubili - amaphaphu ami kanye nepheshana le-GI.
Emasontweni amathathu kamuva nokuhlolwa kwezinkulungwane zamaRandi, izidakamizwa, izidakamizwa nezinye izidakamizwa ngakhululwa e-ICU ngaphindela ewodini engahlala kulo isonto elilodwa nje vo. Isimo sami sengqondo ngemva kokuhlala amasonto angu-8 esibhedlela lapho ekuqaleni ngitshelwa ukuthi 4 kwakungekuhle ngempela. Ngaphuma esibhedlela ngesikhathi sePhasika ngesithembiso sokuthi ngizoya kohlolwa kabili ngesonto. Inyanga ngiphumile esibhedlela futhi ngagcina nginesifo esibi se-shingles esathatha amasonto amathathu.
Kusukela ngesikhathi ngiqala i-chemo kwaze kwaba ngemva kwe-ICU, ngalahlekelwa izinwele zami ezinde ezinsundu izikhathi ezintathu futhi isisindo sami sasuka ku-55kg saya ngaphezu kuka-85kg. Umzimba wami umbozwe izibazi ezivela kuma-biopsies, ukuhlinzwa, izikhwama zokudonsa amanzi, imigqa emaphakathi, kanye nokuhlolwa kwegazi okuyinqwaba kodwa anginawo umdlavuza futhi bengilokhu nginjalo kusukela ngokufakelwa kwami ngoFebhuwari 2010.
Ngibonga kakhulu kubasebenzi base-RBWH ward 5C, i-hematology, ne-ICU ngokunginakekela okuhle kangaka kanye nomndeni wami.
Phakathi nalesi sikhathi, ngathunyelwa futhi ukuba ngiyobona udokotela ovamile. Ngangiyindida ephelele kuye. Wayala ukuba kuhlolwe igazi izikhathi ezingu-33 ekundivakasheleni kathathu lapho athola khona ukuthi amazinga ami e-ACE (Angiotension Converting Enzyme) ayephezulu. Amazinga wami we-IgE nawo ayephezulu ngendlela engavamile, ehlezi ku-77 600, ngakho wabheka i-Hyper-IGE syndrome. Njengoba amazinga ami e-ACE ayeshintsha waphinda wa-oda lokhu kuhlolwa, wangitshela ukuthi kuzo-odwa i-CT scan uma lokhu kuhlolwa kubuya phezulu. Mina nomndeni wami asikaze sikujabulele kangaka ukuthola ucingo oluvela kudokotela ohlinzwa kuthiwa kukhona okungahambi kahle. Kwasho ukuthi sisendleleni yokuyoxilonga ukuthi ngabe yini edala zonke lezi zinto ezixakile ezenzeka emzimbeni wami.
