Sawubona, igama lami ngingu-Liv futhi kwatholakala ukuthi ngine-stage 2 Hodgkin Lymphoma ngomhlaka-12 Ephreli, 2022, izinyanga ezi-4 ngemuva kokuthola isigaxa entanyeni yami.
Ngobusuku Bangaphambi kukaKhisimusi wango-2021, ngathola ngokungahleliwe isigaxa esivuvukele entanyeni yami esasivele siphume ngaphandle.
Ngokushesha ngenza ukubonisana ngocingo ukuze ngitshelwe ukuthi akufanele kube bucayi futhi ngiye kudokotela wami uma ngikwazi ukuze ngiqhubeke nophenyo. Ngenxa yamaholide kanye nesikhathi samaholide esimatasa, kwadingeka ngilinde ukubona udokotela owabe esengidlulisela ukuba ngiyothola i-ultrasound kanye nokuhlolwa kwenaliti okuhle okwenziwe maphakathi noJanuwari. Njengoba imiphumela ye-biopsy ibuya ngokungacacile ngafakwa kuma-antibiotics kanye nokuqapha ukuze ngibone ukuthi akukho yini ukukhula. Ngokukhungathekisayo ama-antibiotic ayengenawo umthelela kodwa ngaqhubeka nempilo, ngisebenza, ngifunda futhi ngidlala ibhola masonto onke.
Ngalesi sikhathi ngokuhamba kwesikhathi, olunye uphawu lwami okuwukuphela kwalo kwakuwukulunywa, engangilubeke phansi ngenxa yokungezwani komzimba nezinto ezithile kanye nokushisa kwasehlobo. Ama-Antihistamine ayezodambisa okunye ukulunywa, kodwa kwaqhubeka isikhathi esiningi.
Ekuqaleni kukaMashi belingakakhuli kodwa lalisekhona futhi liyabonakala, abantu bephawula noma belikhomba njalo, ngadluliselwa kudokotela wegazi futhi angibabonanga kwaze kwaba sekupheleni kuka-April.
Ngasekupheleni kukaMashi, ngabona ukuthi isigaxa sase sikhule phezu komphimbo wami, singaphazamisi ukuphefumula kwami kodwa sibonakala nakakhulu. Ngaya kudokotela lapho akwazi khona ukungithola ukuthi ngibone udokotela wegazi ohlukile ngakusasa nge-CORE biopsy kanye ne-CT scan ebhukwe konke phakathi nesonto elizayo.
Juggling inyuvesi kanye nomsebenzi phakathi kwazo zonke izivivinyo ezenziwayo ekugcineni kwatholakala ukuthi ngine-Hodgkin lymphoma, cishe izinyanga ezine ngemva kokuthola isigaxa entanyeni yami.
Njengawo wonke umuntu awukaze ulindele ngempela ukuthi umdlavuza, ukuba neminyaka engama-22 futhi uphila impilo evamile enezimpawu ezincane, bebenganganakwa kalula bekungagcina kuholele ekuqaguleni okubi kakhulu/ukuxilongwa komdlavuza ngokuhamba kwesikhathi.
Ukuxilongwa kwami kungenze ngacabanga ukuthi ngingaqhubeka kanjani hhayi kuphela ngokwelashwa kodwa nemithelela engaba khona kamuva ekuphileni.
Nganquma ukwelashelwa ukuzala ukuze ngimise amaqanda ami, okwakuyinqubo ekhathazayo ngokwengqondo, ngokomzimba nangokomzwelo.
I-Chemotherapy yaqala isonto ngemva kokutholwa kweqanda lami ngomhlaka-18 Meyi. Usuku olunzima kakhulu olunezinto eziningi ezingaziwa eziya ekwelapheni ngamakhemikhali, nokho ukusekelwa kwabahlengikazi bami abamangalisayo kanye nozakwethu nomndeni wami kwenza lokho okungaziwa kwancipha kakhulu.
Sekukonke ngizoba nemizuliswano emine yokwelashwa ngamakhemikhali nge-radiotherapy okungenzeka idingeke kamuva. Imizuliswano yami yokuqala emibili yokwelapha ngamakhemikhali kwakuyi-BEACOPP kanti eminye emibili kwakuyi-ABVD, yomibili ibe nemiphumela ehlukile emzimbeni wami. BEACOPP Ngaba nemiphumela engemihle emincane ngokukhathala nokucanuzela kwenhliziyo okuncane kakhulu, uma kuqhathaniswa ne-ABVD lapho ngine-neuropathy eminweni yami, ubuhlungu emhlane wami ophansi kanye nokuqwasha.
Kuyo yonke le nqubo bengilokhu ngizitshela ukuthi ngihlale nginethemba futhi ngingazivumeli ukugxila emiphumeleni yomdlavuza engase ingigulise, okube wumzabalazo ngasekupheleni kohambo lwami lwe-chemo futhi ngiyazi kubantu abaningi ukuthi umzabalazo.
Ukulahlekelwa izinwele kwaba umshikashika, ngalahlekelwa amasonto amathathu emzuliswaneni wami wokuqala wokwelashwa ngamakhemikhali.
Ngaleso sikhathi kwaba ngokoqobo kimi, izinwele zami njengabantu abaningi zaziyinto enkulu futhi ngangihlala ngiqinisekisa ukuthi zibukeka zingcono kakhulu.
Nginamawigi amabili manje okunginikeze ukuzethemba okukhulu ukuphuma, ukwesaba enganginakho ekuqaleni kokugqoka iwigi nokungabi nezinwele kuphelile futhi manje sengingakwazi ukwamukela lesi sici sohambo lwami.
Kimi, ukuba yingxenye yamaqembu asekelayo, ahlanganisa Lymphoma Phansi Ngaphansi on Facebook futhi I-Pink Fins, uhlelo lwendawo lokusekela umdlavuza kanye nenhlangano esiza abantulayo endaweni yangakithi (Hawkesbury) okungisizile ukuthola ukwesekwa kulabo abahlangabezana nezinkinga ezifanayo enginazo.
Lawa maqembu okusekela abe wusizo olukhulu kimina. Bekududuza ukwazi ukuthi abanye abantu bayakuqonda engibhekene nakho, futhi ukuba nomphakathi ku-inthanethi futhi mathupha kube ukusekela okukhulu lolu hambo.
Iphuzu elilodwa engifuna ukunxusa abantu ukuthi balikhumbule ukuthi ungazinaki izimpawu futhi uphikelele ngokuzama ukuthola imbangela yezimpawu zakho. Kwaba nzima ukuhambela zonke izikhundla nokubhekana nazo zonke lezi zivivinyo. Kwakukhona izikhathi eziningi ohambweni lwami lokuxilongwa lapho ngangifuna ukuyeka khona ngingazi noma ngiyoke ngiyithole yini impendulo. Ngifuna ukugcizelela ukuthi kubaluleke kangakanani ukuphikelela futhi ungazizibi izimpawu uma zivela.
Bekungaba lula kakhulu kimina ukuzama ukuziba ngethemba ukuthi ngokuhamba kwesikhathi lezi zimpawu zizonyamalala, kodwa Ngiyabonga ngokubheka emuva ukuthi ngibe nezindlela nokusekelwa ukuze ngifune usizo.
PHELA futhi sicela ungazizibi izimpawu.
